Educator, Advocate for Autistic Children and Mom, Michele Pierce Burns

Michele Pierce Burns is a consultant, fundraiser, writer, and public speaker focusing on autism awareness and acceptance. She works part-time for Celebrate the Children, a State-Approved School for Children with Alternative Learning Styles in Wharton, NJ. She is the proud mother of Danson Mandela Wambua, age 9, and has recently co- written a book with him entitled DANSON: The Extraordinary Discovery of an Autistic Child’s Innermost Thoughts and Feelings (St. Lynn’s Press, April 2009). Michele is currently collaborating with Illustrator Louis Henry Mitchell (Senior Character Designer and Creative Director at Sesame Workshop) on a second book for Danson entitled I Love Everything About You which affirms the belief that every child with autism is a perfect blessing exactly as he or she is (St. Lynn’s Press, Spring 2010).

Michele and Danson have been featured on OPRAH, The Today Show, Larry King Live, and in the documentary Autism Every Day which premiered at the Sundance Film Festival in 2007. Michele volunteers and consults at: Sesame Workshop Healthy Habits for Life and Autism Awareness Project, as a member of the family services committee at Autism Speaks, HALO (Helping Autism through Learning and Outreach), Seeds of Hope Outreach in Southern Africa (dedicated to bringing services and hope to orphans due to AIDS), and at Connor’s House, a home-like community for family-centered care for children with complex health needs.

Previously, Michele was a high school English teacher and co-founded two college preparatory-based charter schools and a summer academy. She holds a B.A. from Wesleyan University (English/Afro-American Studies), a M.A. from Stanford University (Education), and a M.Ed. from Harvard University (Administration, Planning, and Social Policy).She is a certified Yoga and Yoga for the Special Child teacher and a Reiki Master. She is so grateful to share her daily life with Danson and her beautiful husband Michael.

Comments

Comment from admin
Time March 17, 2009 at 2:22 am

Danson is my greatest teacher.

He is a brilliant and complex and a sweet and loving child. Although he would say “young man” since he is about to be ten. He is just incredible and, he is incredibly courageous in the way that he pushes through his natural tendencies toward isolation and non-communication because he has very little verbal language.

He is labeled as non-verbal but I never use that term for him because he tries to talk all day long, every day and that term does not acknowledge the tremendous effort that he makes. He does say words. They may not be understood by many people but, in context, we do understand what he is trying to say.

Because he has very little verbal language and because of his sensory overload all of the time, with sounds and filtering out voices and the things he may hear externally or things that we can not even detect, the world is kind of a scary and overwhelming place for him. I say that he is absolutely my hero. He is so courageous because everyday he just goes out there and he keeps trying to connect with people.

Writing this book was all his idea. He said that he wanted to share his

“Holy stories with the world”.

In the beginning, his goal for the book was to begin a dialogue of inspiration. He says in the book

“How is one little life supposed to turn the world to love when there is so much suffering”.

That is one of the things he wonders about all of the time. For his tenth birthday we told him we would take him on a trip, anywhere that he wanted to go. He said two things:

“I want to go to Kenya to be with my people” (his father is from Kenya and he has never been there), and then he said

“I want to go to Darfur to help”.

He is pretty amazing that way. His heart is huge.

Comment from admin
Time March 17, 2009 at 2:23 am

Danson wrote his first word about two years ago. Before that he did not communicate at all.

When he began writing he was with his extraordinary therapist and teacher, Soma Mukopadhyay. She is out of Austin, Texas and has worked with thousands of children around the world utilizing a method in which the children point at an alphabet board and spell words. Ultimately they will learn move from the alphabet board to handwriting independently if they choose.

Danson began when he was seven and a half years old. The first time we took him the school we were astounded. We were there for a week, and to learn that all along, his whole life, he was taking in everything… He knew how to multiply. He knew about political topics and current events! It blew our minds.

It started out simply, with him writing one or two words at a time. Soma asked him what he wanted for his birthday and he said “Jeans and an iPod”.

(Laughing)

We said “What! He’s an 8 year old kid!”, which we always knew but, to have the feedback from him that he was in fact retaining and understanding, was just incredible.

I went home so motivated.

At that time we were home schooling him. We home schooled him for about two years because we couldn’t find a school that was safe or appropriate for him in terms of honoring him as an intelligent person. He calls himself gifted. He often talks about me starting a school for him and he says it would be for -

“Gifted children like me.”

I love that.

We home schooled him for a couple of years and we began doing these lessons everyday just like Soma taught us. We would read an academic text of some type and then ask Danson questions about it. It was hard at first. I felt like I didn’t know what I was doing and I didn’t understand how to engage him. I just wanted to move to Austin, Texas and let him sit with Soma all day.

Then, one day, a few months into it, a breakthrough happened and he just started writing.

Comment from Debra
Time March 30, 2009 at 10:58 am

Wow, how encouraging and inspirational. I am the grandmother of the cutest, brightest 4 year old (soon to be 5)little girl who has been diagnosed with autism. It is so amazing to read your son’s words because I have believed all along that she is so full of knowledge and I know she understands what is said to her. She has just been changed to a new diest and I have seen very good changes already in just about 6 weeks or so. I long for the day that I can hear her voice and all the things she knows. I wish you both all the best.

Comment from Bonnie - mom to kid with CAPD
Time July 1, 2009 at 7:15 pm

Wow, Michele, thank you so much for sharing this inspiring story! I want more people to read about it. Our son did not start talking until he was almost 4. Even today, 3 years later, his language is stilted and unclear. A relative once said to me that he felt his relationship with our son was diminished because they could not talk. My eyes grew wide and I said my relationship with our son was greatly enhanced because we learned other ways to communicate. I hope many people learn that words are not our only form of connecting, and lack of words is not a reflection of what is really going on inside the heads of these beautiful souls. My son is also my greatest teacher, and I thank God every day for sending him to me. Okay, now I’m crying just thinking about the joy of it… Thanks so much for sharing!

Comment from Jacque Schneider
Time July 15, 2009 at 10:12 pm

Thank you for such an illuminating book….It was wonderful to see you again and to be a part of your journey….keep up the wonderful work..and Danson sounds like a wonderful kid…..love, Arianes Mom

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  • Jacque Schneider: Thank you for such an illuminating book….It was wonderful to see you again and to be a part...
  • Bonnie - mom to kid with CAPD: Wow, Michele, thank you so much for sharing this inspiring story! I want more people...
  • Vanessa Gang: May 31st 2009. Dear Michele, I’m sure I have not specifically told you how knowing you, in your...
  • Sarah Bradfield: Thank you Danson and Michelle for sharing your personal conversations with the world. My mother gave...
  • Kelly Langston: Reading this poem literally sends chills up my spine. As an ASD mom, the focus of the experience for...